Tag Archives: Cancer

Working it out, Dec 10, 2015

Today’s sessions went as planned. According to my reader, there are 23 minutes left in the book I’m currently reading while doing my walking. Based on my times today – one at 11 minutes, and one at 15.25 – I should finish it tomorrow, and be ready to find something else to load on to it to read while putting one foot in front of another and walking it all out. Also fortunately, I got my second session in before I had to go to the NOC to clean up something one of server clients had done (and that continues now that I’m back at the ranch, because InnoDB is a massive pain in the ass).

Ah well. Sleep is overrated. At least for me.

Working it out, Dec 9, 2015

Both treadmill sessions completed successfully today. Somewhat surprisingly, the afternoon session went just over 15 minutes, even though I was fairly tired by that time – around 6 PM – and I am counting that as a victory. I also spent some time weeding the herb garden. Another victory.

The liquid iron supplements smell vaguely like cinnamon. I have to say that initially that they don’t taste like anything . Once down the hatch, however, my taste buds catch up and there’s a filmy, iron-y, minerally thing going on that’s fairly unpleasant. Since just about everything I have to take tastes horrible, the order of the non-meal meds matters. Therefore, the liquid iron stuff goes first, followed by everything else, in reverse order of how awful they taste. It doesn’t entirely take away the nasty taste of the iron, but it does dull it and help get rid of it more quickly than would be possible if I took it last, like the first time I took it. Blergh. I hope none of you ever have to know the joy of dealing with these things.

Working it out, Dec 8, 2015

Even though my guts are screaming at me not to do it, it’s time to hit the treadmill for the second session of the day. I’ve been hanging in on average at about 12.5 minutes each, which is not so bad considering, and think this will improve. Today I also picked up these beauties, which I’m sure taste delicious and not like reboiled ass.Liquid iron supplements

We shall see. These, like some of the other meds, have to be taken without food, well before or after eating. It seems like a good portion of my day is spent eating (such as it is) or pouring meds down my piehole.

 

 

Medical alert

I was having Issues, as they say – physical Issues – including tremendous fatigue and incredible muscle weakness and shortness of breath from the slightest of physical exertions. As we all know, life on the ranch demands a great deal of manual labor, whether it’s weeding, hauling dirt, or dealing with the heaviness of the hives in the beeyard. In addition, I’ve been having difficulty concentrating and focusing, and some random memory issues (it took me a good five minutes one day to come up with the word tambourine to identify its use in a song I was listening to while driving somewhere – not good, and a little scary for me given that my memory has always been exceptional).

I requested a full blood workup from my doctor, and the results came back as: anemia, low thyroid, elevated liver enzymes, low hemoglobin, and low mean corpuscular volume – the latter two can help explain a lot, since the red blood cells are what carry the oxygen everywhere. All of these things would be contributors to the problems I was having getting anything done. Now, armed with a higher dose thyroid med and with what will be iron supplementation, things should be getting back on track over the next six to eight weeks. I took myself off the crestor (and informed my doctor of this), to get it out of the way to better determine if the low everything is creating the problems I’ve been having. If things get better over the next month and a half, then we’ll talk about readding the crestor to the mix. Statins are incredibly effective drugs, but they can also have side effects on various parts of the body.

Because I want to be back in form for the spring planting season – to hopefully have a much better year than this one, which was pretty much a lost season – I decided that with the new meds, I’d also begin a routine for exercise/workout separate from the ranch workout. This entails, to start, two 10 minute sessions on the treadmill each day: one right after I get up, hit the bathroom, down my thyroid meds (which need to be taken on an empty stomach and at least half an hour before eating anyhow), and let the dogs out, and one later in the day around the midafternoon slump with which I think everyone gets hit, to avoid having the couch call out to me like a siren, luring me into a nap late in the day. It will also entail resistance training, which I will have to ease into given the muscle spasms that can grip me and making every breath a rather painful affair. I decided to start yesterday on the treadmill, and am pleased with myself for two 10 minute sessions yesterday, and two sessions of 12 and 13.5 minutes today. A slow start is necessary as too much, too soon will send me into a spiral of fatigue it would be difficult to navigate through.

And that is where things stand right now. I’ll have more bloodwork done in mid to late January and we will see how those results turn out.

Choppers

Since Damian asked: pics of the new teeth! Bonus inclusion of the view of the paralysis of my lower left lip and cheek area – hey, fuck you, cancer, you’ve had two tries at me and haven’t killed me yet! Excuse the ratty shirt, as this was a break during manual labor outside.

Say cheese

Life with teeth

We’re on week two (just over, to be technical) with the new fake teeth after having the rest ripped out. In the beginning, it was very, very painful, but as the gums healed, I got my sutures out, and we’ve had some adjustments on the dentures, they’re getting more comfortable. I won’t say completely comfortable, because they aren’t there yet. I haven’t been able to eat real food since the day before extraction, which means these past two weeks have been meal after meal of my usual breakfast: protein shakes and coffees. I’m not really wired for longterm liquid diets; my next visit to the dentist for adjusting the dentures once more is on the 15th. No doubt there will be further addition of the soft form fitting crap they put on the back of the dentures to conform as my mouth continues to heal and change. He says there will probably be about three months of this, to allow for the changes in the bone to settle in, but hopefully at some point before that I’ll be able to use some denture glue to hold the damn things in place so I can try to eat real food. My last attempt at eating, last night, was a disaster and just left me pissed off about the entire thing, while at the same time, intellectually I know that some people have it worse off than me, and I had Roger Ebert in mind at the time, given that he was unable to eat or speak after the last round of cancer bullshit he went through. And today, sadly, he died, so I’m still better off than that.

On we go, though: the great reframing of 2013 continues. The back garden is entirely reframed and ready for weeding, to be followed by hauling dirt/poop to top them off. My sister and I started on the front Tuesday, and I hope to finish that all off by this weekend, as it’s time to plant things that can be directly sowed given that the weather has now turned warm and is staying there instead of giving us random freezes. Plus, the flats under the lights in the barn are suffering from a too long stay – again, thanks to the freakish weather – and they need to be freed and into the frames as well. With any luck, by next weekend, we’ll be ready for the temp labor to run around frantically with wheelbarrows topping everything so we can get our real season underway here.

 

Sliced and diced

Surgery was a success, although I wound up staying overnight in order to get my uncontrolled puking (from the blood swallowed during surgery, primarily, along with general pain) under control. They also wanted to make sure I was taking liquids orally. I finally got to see my face today. Wow. One of the doctors said it would probably get worse than this before it starts getting better. That should be something to see.
pumpkin face!

I also have a humdinger of a bruise on my arm, courtesy of the night nurse trying to get an IV in for the med pump. She finally gave up when it became clear that location was not working, and put it in my elbow. I wound up with matching IVs in the crook of each arm, which made moving around and doing things like trying to drink from a cup rather interesting.

Ow, bruised!

Chasing possibility

Guess who has some potential good news about getting their jaws pried apart? Me. After waiting three weeks to get an appointment with the original ENT who did my surgery, and then waiting an hour and a half past my appointment time to see him today, we talked to him about options to do something about the horrible trismus – going on over seven years now. The beauty of having been operated on by the most respected and senior fellow in his department at that hospital: the ability to be walked personally, by him, up a floor to talk to the surgeons there, and be put into the hands of another maxillofacial surgeon who took about three minutes to suggest a surgery I’d read about some time ago, but which everyone else seemed to think was probably not worth doing: coronoidectomy. He couldn’t guarantee this would solve the problem, of course. But at this point, having an oral opening down to 12mm, which is 2mm lost in the past year alone, I’m willing to try anything – even though it means being intubated through the nose and more PT afterward to keep working on getting back to some semblance of normal (and hopefully wide enough to get teeth in, given the rate at which they’re crumbling under the aftereffects of the radiation). So, they’ve put it in with their scheduler, who will call us with some dates and we’ll go do this thing to see if it will help. No one looks forward to surgery, but I am, as they say, cautiously optimistic.